3-8-2023 David’s Chair for ALS vacation planning (Oregon Coast)
3-7-2023 ALSA Action Alert
| It’s that time of the year again when your members of Congress will decide how much they will fund critical programs for the ALS Community. We are holding a webinar for all advocates to make sure you and everyone impacted by ALS are empowered with the latest information and tools to make your voices heard! Find out how you can advocate for new federal dollars for ALS Research. Register to join us for our advocacy webinar on March 21, 2023 from 12:00-2:00pm ET (11:00am – 1:00pm CT, 9:00am-11:00am PT). You will learn what federal programs need new funds for ALS research and how you can lobby your Senators and Representatives. |
| It is critically important that people with ALS, their families, and the entire ALS Community advocate together with our U.S. Representative and Senators to secure funding for ALS research and improve federal programs. Your advocacy helps Congress understand the real-life impacts of ALS research funding that lead to new treatments for the ALS community. To take action with your members of Congress, please register to join us for a webinar on March 21, 2023 from 12:00-2:00pm ET (11:00am – 1:00pm CT, 9:00am-11:00am PT). During the advocacy webinar, you will hear from volunteer leaders, members of Congress, experts in ALS research, the ALS public policy and advocacy team, and most importantly, how you can request your members of Congress to sign this year’s “ALS Research Dear Colleague” appropriations letter to support ALS research funding. We hope you are able to join us! Disclaimer: **We anticipate this to be a widely attended event and we may reach registration capacity before the event. The event will be recorded and shared online for viewing should you be unable to join us live. |
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| The ALS Association – 1300 Wilson Blvd. – Suite 600 – Arlington, VA 22209202.407.8580 – als.org |
March 1st, 2023 Meeting
Feb 28th, 2023: Clinical Trial Event at 3pm PST
Good Afternoon!
We are excited to share that on Tuesday, February 28 at 6:00p ET I AM ALS and the ALS community will be hosting Ask Me Anything ALS – Clinical Trials. The event will focus on answering questions and sharing people’s experiences with finding, participating in, and preparing for clinical trials,among other clinical trial-related topics. Panelists will include people living with ALS, caregivers and Judi Carey, Research Access Nurse from MGH.
The event is open to anyone to attend and we encourage attendees to presubmit questions when registering for the event, and join in the conversation during the event to share their own experiences.
You can learn more and sign up here!
Please email [email protected] with any questions.