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April 2023 Monthly Meeting

Click on this link to join our ALSSO Monthly Zoom Meeting .

Our in person meeting will be held at:

THE GLEASON INSTITUTE FOR NEUROSCIENCE, E. 325 SPRAGUE, SPOKANE.

Join us every month on the First Wednesday of the month at 5:30 pm. Please add this to your calendar so you can plan to join us!

Hence, the next meeting is scheduled for April 5th, 2023 at 05:30 PM.

     Then the upcoming meetings are scheduled at 5:30 pm as follows:  April 5th, 2023 and May 3rd, 2023, and June 7th, 2023.

For information: call Debbie king at 509-467-8761  

We are a group of ALS patients, family members of patients, and volunteers whose lives have been impacted by Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s disease. ALSSO is a non-profit organization to serve the ALS community in the Inland Northwest. ALSSO offers assistance to other non-profit organizations that help families with ALS.

We have joined together in the belief that together we can make a difference in the quality of the lives of those currently living with ALS.

Due to our experience with the disease, we are able to offer support in many forms. There are many ways we can help, such as; provide meals, rides,shopping, chores, social calls, fun activities, home modification projects, and installation of adaptive equipment. When requested by patients and families, we share our experiences of what worked for us and provide other needed assistance within our capabilities.

ALS Service Organization

alsso.org EIN 26-2613591

P.O.Box 48177 Spokane, Wa. 99228-1177 509-467-8761

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3-13-2023 Link to” I AM ALS” education series

Good Morning PALS and CALS,

Today we wanted to share some information on the I AM ALS website. They have done a wonderful education series called ASK ME ANYTHING. The series includes many topics including: Caregiving tips and information, Tracheostomy, feeding tubes and clinical trials.

The I AM ALS website offers much input from people and families living with ALS and can be a wonderful resource for many questions that arise.

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3-7-2023 ALSA Action Alert

It’s that time of the year again when your members of Congress will decide how much they will fund critical programs for the ALS Community.  We are holding a webinar for all advocates to make sure you and everyone impacted by ALS are empowered with the latest information and tools to make your voices heard! Find out how you can advocate for new federal dollars for ALS Research. Register to join us for our advocacy webinar on March 21, 2023 from 12:00-2:00pm ET (11:00am – 1:00pm CT, 9:00am-11:00am PT). You will learn what federal programs need new funds for ALS research and how you can lobby your Senators and Representatives. 
Register
https://als-org.zoom.us/webinar/register/WN_SLaAySPIQGC1Q4PeAkovpQ
It is critically important that people with ALS, their families, and the entire ALS Community advocate together with our U.S. Representative and Senators to secure funding for ALS research and improve federal programs. Your advocacy helps Congress understand the real-life impacts of ALS research funding that lead to new treatments for the ALS community. To take action with your members of Congress, please register to join us for a webinar on March 21, 2023 from 12:00-2:00pm ET (11:00am – 1:00pm CT, 9:00am-11:00am PT). During the advocacy webinar, you will hear from volunteer leaders, members of Congress, experts in ALS research, the ALS public policy and advocacy team, and most importantly, how you can request your members of Congress to sign this year’s “ALS Research Dear Colleague” appropriations letter to support ALS research funding. We hope you are able to join us! Disclaimer: **We anticipate this to be a widely attended event and we may reach registration capacity before the event. The event will be recorded and shared online for viewing should you be unable to join us live.  
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The ALS Association – 1300 Wilson Blvd. – Suite 600 – Arlington, VA 22209202.407.8580 – als.org