December 2023 Monthly Meeting

Click on this link to join our ALSSO Monthly Zoom Meeting .

Our in person meeting will be held at:

THE GLEASON INSTITUTE FOR NEUROSCIENCE, E. 325 SPRAGUE, SPOKANE.

Join us every month on the First Wednesday of the month at 5:30 pm.

Please add this to your calendar so you can join us!

 Hence, the next meeting is scheduled for December 6th, 2023 at 05:30 PM.

     The upcoming meetings are scheduled at 5:30 pm as follows:  January 3rd, 2024, February 7th, 2024, and March 6th, 2024.

For information: call Debbie king at 509-467-8761  

We are a group of ALS patients, family members of patients, and volunteers whose lives have been impacted by Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s disease. ALSSO is a non-profit organization to serve the ALS community in the Inland Northwest. ALSSO offers assistance to other non-profit organizations that help families with ALS.

We have joined together in the belief that together we can make a difference in the quality of the lives of those currently living with ALS.

Due to our experience with the disease, we are able to offer support in many forms. There are many ways we can help, such as; provide meals, rides,shopping, chores, social calls, fun activities, home modification projects, and installation of adaptive equipment. When requested by patients and families, we share our experiences of what worked for us and provide other needed assistance within our capabilities.

ALS Service Organization

alsso.org EIN 26-2613591

P.O.Box 48177 Spokane, Wa. 99228-1177 509-467-8761

3-13-2023 Link to” I AM ALS” education series

Good Morning PALS and CALS,

Today we wanted to share some information on the I AM ALS website. They have done a wonderful education series called ASK ME ANYTHING. The series includes many topics including: Caregiving tips and information, Tracheostomy, feeding tubes and clinical trials.

The I AM ALS website offers much input from people and families living with ALS and can be a wonderful resource for many questions that arise.

Feb 28th, 2023: Clinical Trial Event at 3pm PST

Good Afternoon!

We are excited to share that on Tuesday, February 28 at 6:00p ET I AM ALS and the ALS community will be hosting Ask Me Anything ALS – Clinical Trials. The event will focus on answering questions and sharing people’s experiences with finding, participating in, and preparing for clinical trials,among other clinical trial-related topics. Panelists will include people living with ALS, caregivers and Judi Carey, Research Access Nurse from MGH.

The event is open to anyone to attend and we encourage attendees to presubmit questions when registering for the event, and join in the conversation during the event to share their own experiences.

You can learn more and sign up here!

Please email [email protected] with any questions.