Today we wanted to share some information on the I AM ALS website. They have done a wonderful education series called ASK ME ANYTHING. The series includes many topics including: Caregiving tips and information, Tracheostomy, feeding tubes and clinical trials.
The I AM ALS website offers much input from people and families living with ALS and can be a wonderful resource for many questions that arise.
We are excited to share that on Tuesday, February 28 at 6:00p ET I AM ALS and the ALS community will be hosting Ask Me Anything ALS – Clinical Trials. The event will focus on answering questions and sharing people’s experiences with finding, participating in, and preparing for clinical trials,among other clinical trial-related topics. Panelists will include people living with ALS, caregivers and Judi Carey, Research Access Nurse from MGH.
The event is open to anyone to attend and we encourage attendees to presubmit questions when registering for the event, and join in the conversation during the event to share their own experiences.
Our upcoming meetings are scheduled at 5:30 pm as follows: March 1st, 2023, April 5th, 2023 and May 3rd, 2023.
For information: call Debbie king at 509-467-8761
We are a group of ALS patients, family members of patients, and volunteers whose lives have been impacted by Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s disease. ALSSO is a non-profit organization to serve the ALS community in the Inland Northwest. ALSSO offers assistance to other non-profit organizations that help families with ALS.
We have joined together in the belief that together we can make a difference in the quality of the lives of those currently living with ALS.
Due to our experience with the disease, we are able to offer support in many forms. There are many ways we can help, such as; provide meals, rides,shopping, chores, social calls, fun activities, home modification projects, and installation of adaptive equipment. When requested by patients and families, we share our experiences of what worked for us and provide other needed assistance within our capabilities.