Next meeting is tomorrow… February 1st 2023

Click on this link to join our ALSSO Monthly Zoom Meeting

Our in person meeting will be held at THE GLEASON INSTITUTE FOR NEUROSCIENCE, E. 325 SPRAGUE, SPOKANE.

Join us every month on the First Wednesday of the month at 5:30 pm for our meetings. Please add this to your calendar so you can plan to join us!

 So the next meeting is scheduled for FEBRUARY 1st, 2023 at 05:30 PM.

     Our upcoming meetings are scheduled at 5:30 pm as follows:  March 1st, 2023, April 5th, 2023 and May 3rd, 2023.

For information: call Debbie king at 509-467-8761  

We are a group of ALS patients, family members of patients, and volunteers whose lives have been impacted by Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s disease. ALSSO is a non-profit organization to serve the ALS community in the Inland Northwest. ALSSO offers assistance to other non-profit organizations that help families with ALS.

We have joined together in the belief that together we can make a difference in the quality of the lives of those currently living with ALS.

Due to our experience with the disease, we are able to offer support in many forms. There are many ways we can help, such as; provide meals, rides,shopping, chores, social calls, fun activities, home modification projects, and installation of adaptive equipment. When requested by patients and families, we share our experiences of what worked for us and provide other needed assistance within our capabilities.

ALS Service Organization

alsso.org EIN 26-2613591

P.O.Box 48177 Spokane, Wa. 99228-1177 509-467-8761

CLICK HERE TO JOIN THE MEETING: http://wsu.zoom.us/j/98985423759

I AM ALS- Webinar on January 31st

Ask Me Anything ALS – Feeding Tubes/Nutrition (click this link to register)

As ALS progresses, eating and drinking can become difficult, which can often lead to discussions about feeding tubes. The decision to get a feeding tube is a personal one. There are advantages and disadvantages that must be taken into account when considering a feeding tube. It can be helpful to hear from those who have been through this process. Like with all decisions, it’s incredibly important to consider your personal values when navigating the healthcare system. 

On January 31st at 6pm ET, join the I AM ALS community and Sarah Luppino, MSN, NP-BC, Mass General Hospital Healey Center for ALS for a conversation on feeding tubes and nutrition to learn more about how and why they decided to get a feeding tube, the advantages and disadvantages, how they maintain their feeding tube and more.  

Panelists will include:

  • Sandra Marlowe, living with ALS
  • Sarah Luppino, MSN, NP-BC, Mass General Hospital Healey Center for ALS
  • Justin Upchurch, living with ALS
  • Gill and Edgma Garcia, living with ALS and spouse/caregiver to Gill
  • Julie Suarez, living with ALS