join in our efforts of raising funds for ALS patients-Shop ALSSO.terrilynn.com
join in our efforts of raising funds for ALS patients-Shop ALSSO.terrilynn.com
ALSSO is a group of volunteers – relatives and friends of people who have had ALS, plus current patients and caregivers (often referred to as PALS and CALS).
ALSSO's mission is to befriend patients and caregivers and to share resources and ideas through our monthly meetings. ALSSO helps provide PALS and their caregivers and loved ones with other ALS programs, ideas, resources, information, and small amounts of funding if possible and appropriate for needs specific to each situation. ALSSO will provide each PALS with a bidet if that is something they would like to have.
Contact: Debbie King
(509) 467-8761
E-mail: alssospokane1@gmail.com
Website: www.alsso.org.
Monthly meetings: 1st Wed. of the month at The Gleason Institute for Neuroscience,
325 E. Sprague at 5:30 p.m.
(Please call to confirm.)
Meetings are hybrid - Zoom and In Person.
Matt's Place Foundation was started by local veteran, Matt Wild and his wife Theresa, shortly after his diagnosis of ALS.
Matt's Place Foundation is a 501(c)(3) charitable organization created to assist people living with ALS and their families. Its ultimate intention is to provide hope, housing, and assistance to families living with ALS.
MPF has built totally accessible houses in Coeur d’Alene and North Spokane, each for a person with ALS and their families or caregivers to live in, lessening the financial burdens that ALS causes on families. They also help local PALS acquire ramps and fund remodeling projects.
You will find more information about Matt's Place Foundation, their events and applications for their grants on their website.
Contact: Matt or Theresa Wild
(509)995-9103
matt@mattsplacefoundation.com Website:
Local Care Coordinator (CC) is available to help you get needed medical equipment and devices to improve the quality of your life. The ALS Association maintains a loan locker. You should always check with the CC before purchasing anything that your insurance does not cover. There may be grant money available to help pay for some of your needs.
They hold events to educate and to increase awareness about ALS and they are involved in ALS research. ALSA is connected to The Virginia Mason ALS Clinic in Seattle and to the Providence St. Luke’s ALS Clinic in Spokane.
Contact: Glen Garcia, Care Coordinator
(509)725-1002
ALSA has good websites with information about ALS and many good links - https://bit.ly/ALSAnews.
Catholic Charities of Spokane is the administrator of Team Gleason funds for our region’s PALS. They will help with remodeling, funding vans, domestic expenses, temporary caregiving funding, etc. on a case by case basis.
They will want to know what you and your family AND other organizations are going to be contributing towards the need, so you will be asked to coordinate your request with ALSSO and possibly with Matt’s Place (and VA) as well.
Contact: Scott Cooper
(509) 358-4273
Create a physical location to promote and educate families on various adaptive technologies that are available to enhance the quality of life of patients with neurodegenerative diseases.
The Adaptive Technology Center, located in Spokane, serves as an information and exploration center for families to explore and learn about ways to better incorporate adaptive technology into their lives. We aim to encourage independence for those with ALS and their families and invite those affected by neurodegenerative diseases to stay involved in the community of people who help support them on this journey.
The Adaptive Technology Center is open by appointment only at 325 E. Sprague Ave. in Spokane’s University District
https://gleason.wsu.edu/adaptive-technology
Team Gleason helps provide individuals with neuromuscular disease or injuries with leading-edge technology, equipment, and services. Call to inquire and to learn more.
Contact: Rian Emmerson
(509) 869 8630
The Live Like Lou Foundation is a nonprofit dedicated to leaving ALS better than we found it. Our mission is to create and connect communities to stimulate emerging ALS research and uniquely support families affected by Lou Gehrig’s disease. We do this in honor of Major League Baseball Hall of Famer Lou Gehrig and the more than 30,000 people living with ALS throughout North America.
Our Connect and Serve program matches people living with ALS and/or their families with volunteers for short-term or one-time projects in and around the home
Iron Horse Scholarships—if the person living with ALS has dependents pursuing higher education, we have a scholarship program.
Home improvement grants—this program grants $500-$2,500 to ALS families for completing projects/renovations that become necessary following an ALS diagnosis.
Holiday respite grants—our board offers financial gifts to all our registered ALS families during the holidays.
In addition to our ALS family programs, we fund emerging ALS research, and aim to generate more awareness for ALS through partnerships and events.
Hope Loves Company is a nationally recognized nonprofit that provides support, resources and community to children who have or had a loved one with ALS. We give children and young adult caregivers the tools they need to navigate grief, find joy, and remain hopeful.
Kids Are Curious:
Camp HLC
Beyond The Bunk
Young Adult Retreat
Hugs Of Hope Packages
Parent Meet Ups
Hope Grants
Find out more here:
https://www.hopelovescompany.org/
or email: info@hopelovescompany.org
Coming Soon
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